Since returning from overseas I have been wonderful. Health wise I had a one month break from my injections for MS and feel so good that I have decided to continue my break. My head feels clear, my legs are working spectacularly well and I just feel great. Don’t worry I am not acting blindly I have discussed all of this with my MS nurse and will seek advice from my Neurologist. At the moment I am just enjoying feeling good.
This week I decided to do a strenuous deep water running class at my local pool. It went for an hour and I was so impressed with myself when I finished. At the end a lady said to me “did you enjoy that?” With excitement I answered “I have MS and I am really excited that I have found a good exercise that I can do and keep cool“. The lady then spoke for the next ten minutes telling me all about her best friends fifty year old brother who has suffered with MS and they have just made the decision that they can no longer help him and that she will travel to Sydney for the funeral.
I have two questions for you:
1) Did this person really think before she spoke?
2) What was the point of this story?
I actually wanted to say to her “how do you think this makes me feel?” Was intentionality involved? Did the lady mean to be unkind? Absolutely not. She was simply letting me know that she also knows someone with MS. As a widow and someone with MS I am continuously bombarded with somewhat inappropriate remarks and I can mostly brush them off but for some reason this one hit a raw nerve. Maybe it was fear? This lady was standing in front of me telling me my worse case scenario. To have a break from my injections is a major decision and maybe I was feeling a little insecure about it. I am simply listening to my own body and need to feel confident about this decision.
On reflection I also have to ask myself two questions:
1) Why did I mention I had MS?
2) What response was I looking for?
It is too emotionally expensive and damaging for us to remain too ANGRY for too long. The anger has gone and just a little bewilderment remains. I understand that not every story is joyful and inspiring but I think it is good to consider your audience.
Tonight I retold this story to my children and reminded them to follow the simple rule below.
Maybe we all just need to think a little before we speak sometimes. This might just be a timely reminder for me as well.